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Fairfield Spinning Studio Hosts Ride For Rare Childhood Medical Issue

FAIRFIELD, Conn. -- ZenRide Spinning Studio in Fairfield will host the first "Biker-Barre" to help fund research for a cure and awareness about a rare and complex childhood medical issue on Sunday, Sept. 13.

Reagan Shanley of Fairfield has a rare childhood medical condition, Hydrocephalus. A spinning ride will be held at ZenRide in Fairfield on Sunday, Sept. 13 to raise funds and awareness. Reagan's mother, Cindy, is a spinning instructor at ZenRide.

Reagan Shanley of Fairfield has a rare childhood medical condition, Hydrocephalus. A spinning ride will be held at ZenRide in Fairfield on Sunday, Sept. 13 to raise funds and awareness. Reagan's mother, Cindy, is a spinning instructor at ZenRide.

Photo Credit: Contributed

The ride will be at the spinning studio at 869 Post Road in Fairfield beginning at 4 p.m. 

The event raises money for the Pediatric Hydrocephalus Foundation, an all-volunteer non-profit 501(c) (3) charitable organization. Pediatric Hydrocephalus is the build up of spinal fluid in the brain, which can lead to injury or even death if not treated.

Participants will sweat, sculpt and stretch, then enjoy some bubbly and bites while bidding on silent auction items. All proceeds will go directly to the PHF. Fairfield’s Bar Method is co-hosting the event with ZenRide.

Fairfield resident Cindy Shanley, a ride instructor at ZenRide, has a young daughter, Reagan, with Pediatric Hydrocephalus. Reagan turns 3 years old on Oct. 8. Last year, Fairfield's Sally Fulcher ran the Fairfield Half Marathon to raise awareness and funds for the PH Foundation. She netted nearly $17,000.

The Foundation, an all-volunteer non-profit 501(c) (3) charitable organization, educates the community by raising the level of awareness about hydrocephalus and provides support to families, friends, and children affected by this brain condition.

Additionally, the PHF advocates on behalf of the members of the hydrocephalus community and works with policy makers at the state and federal levels to raise awareness and push for more research and support in the fight against hydrocephalus. All donations are tax-deductible. 

September is National Hydrocephalus Awareness Month and it is estimated that one in 500 babies in the United States are born with Hydrocephalus each year.

The event costs $40 to reserve a bike. Click here to register online and click here to donate.

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