SHELTON, Conn. — Shelton resident Jaxon Bucholz turns four this August, and he's already spent more time on the operating table than most folks do over the course of an entire life.
Jaxon, along with his twin brother Kevin, were born eight weeks early. Kevin was healthy and strong. Jaxon was born with omphalocele-exstrophy-imperforate anus-spinal defects, or OEIS.
OEIS is a condition that resulted from his umbilical cord not being fully attached to his stomach. It caused his organs to develop in a pouch outside of his abdomen. Immediately after being born, Jaxon was rushed into an 8-hour surgery before his father, Jeremy even had a chance to hold him.
Jaxon remained in Yale Pediatrics Hospital NICU for two years. He's had to endure another surgery that lasted 29 hours, and he continues to fight.
Jeremy and his wife, Katie have continued to fight as well, but the battle has taken its toll. The two have left their careers to become caretakers for Jaxon as well as raise Kevin and their third child, Jordyn.
A Gofundme has been started to help the Bucholz family defray the cost of Jaxon's ongoing battle. To date, more than $4,000 has been raised and more than 4,000 people are following Jaxon's Miraculous Journey on Facebook .