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Kettle Bells For A Cure: CrossFit Gyms Raise Thousands For Trumbull Tot

Crossfit gyms across the county teamed up to raise funds to help a Trumbull boy with a rare genetic disorder.
Crossfit gyms across the county teamed up to raise funds to help a Trumbull boy with a rare genetic disorder. Photo Credit: Contributed
Cameron Simpson has a rare genetic disorder.
Cameron Simpson has a rare genetic disorder. Photo Credit: Contributed

TRUMBULL, CONN. -- Eleven CrossFit gyms in Fairfield County went to bat and beyond to support a 1-year-old Trumbull boy and raised more than $10,000 to help his family find a cure for his rare disorder.

Cameron "Cam" Simpson has Alternating Hemiplegia of Childhood or AHC, which is characterized by recurrent attacks of temporary paralysis, stiffness, and unusual eye movements. There is currently no cure for AHC.

The gyms competed in "the Cam" workout in late February to raise funds for AHC Foundation.The organization strives to develop research for effective treatments and find a cure for AHC.

The Cam workout or “WOD” was designed by Molly McMugh, Cameron’s cousin. It challenged the gym members to do 19 repetitions of a variety of exercises and to do it as many times as possible in 19 minutes. Why 19?

"Nineteen is the number of the chromosome that is mutated in Cam’s genetic makeup and in those that suffer from AHC,'' said Cameron's mother, Corie.

Cam is a happy little 1-year-old boy that is literally one in a million, as the prevalence rate of the mutation is one in a million. He adores his older brother Tyler and he and his family enjoy life in Connecticut as much as possible.

“AHC presents itself in the form of an episode that can last a few minutes, days or even weeks. There is no way to predict an episode and no cure for the disorder,'' Corie said. Cameron is one of 850 cases worldwide.

CrossFit gyms from Black Rock, Bridgeport, Stamford, Fairfield, Stratford, Monroe, Norwalk and Sacred Heart University helped raise funds for AHC.

A Cure For Cam will be hosting a fundraiser dinner at the Gaelic American Club, Fairfield.

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